I’m sitting here writing, with a sharp pain going down my neck to the middle of my shoulder blades.
I’ve been researching, googling over the last 2 weeks. I see a lot of post about living with MS but not so much about getting to the diagnosis.
My MRI is in an hour. The neurologist ordered a cervical and lumbar MRI. I’m guessing she’s not thinking it’s MS.
From what I’ve read, it’s not uncommon to be misdiagnosed or not diagnosed for years. This doesn’t faze me.
I know I must do the best for me. I’ve learned that with the other medical challenges.
There is fear because I seem to have a lot of the symptoms for MS of the spine and MS of the spine is usually progressive and can lead to quadriplegia.
I can’t imagine myself as a quadriplegic. And I’ve figured folks who have become quadriplegic didn’t imagine themselves that way either.
I do live in a right to die state but not sure if it’s in effect yet. We voted on it a few years back but sometimes it takes time for the good laws to take effect.
Funny. I’ve been so vocal about folks and the current president wanting to get rid of Obamacare. Little did I know it could affect me sooner than I thought it would.
Even before a wheelchair, I’m afraid of falling and not being able to get to the phone for help.
I’m afraid of losing my job. I’m afraid of losing my house.
I’m afraid of having more days like Sunday. I had so much pain all over, it was hard to move.
I had a lot of pain with Crohns but this isn’t the same. Crohns was mostly localized but having pain all over is absolutely horrible.
These posts won’t be well polished or structured. They will be about what I’m thinking and feeling at the moment.
And hopefully, there won’t be too many. Hopefully whatever I have is temporary and I can move on with my life without these fears hanging over me. Hopefully.